Leslie and I traveled to Los Angeles yesterday and met with the esteemed urologist from Keck USC. We waited in the waiting room for two hours and we were finally ushered into a room with a P.A. or an intern, not quite sure what she was? Young and a little too confident for my taste. An attractive woman, the vibes with her were terrible from the getgo. Not sure why, but it just didn't click between us.
She reviewed my records and said that with my particular T1 cancer there were three options available in the accepted protocol and that they all involved complete removal of the bladder. Said the doctor was an expert at creating a new bladder out of a bowel section but that I would have to wear rubber pants at night until I got the hang of the whole thing. Did I want the internal, the external or perhaps a nice port through my navel?
The short story is that I flipped out, internally anyway, mostly, said it was unacceptable to me, argued strongly for a more incremental approach. I am not sure why but I was incredibly angry, irrationally so. She took stock of the situation, stood up and got the doctor.
My rapport with him was fantastic. Night and day. He actually agreed with me, and came up with a plan. He will reevaluate the blue light pathology slides and make sure that the reads are accurate. In six weeks they are going to resect the old tumor locations. If they don't find cancer cells in the new pathology reports than I will start an immunotherapeutic regimen as I have before and if it is BCG, which is now incredibly hard to obtain because of global scarcity, I jump to the head of the list because of the nature of my carcinoma.
I can't ask for more than that. I can't guarantee that we will ultimately be successful but I am not psychologically equipped for another organ removal at the moment and am not willing to say goodbye to my bladder without a fight. Bought some time. Resorted to hard bargaining but it is the only body I have and at times you have to be your own fierce personal advocate.
USC is the number one rated urology school in California, rated fourth nationally. If you are ever in serious medical straits, go to a teaching hospital. I feel very good about this doctor. This turn of events will allow me to exhibit at the majority of my shows in the next two months and keep everything going. Hopefully I will gain strength and energy in the days ahead. Thanks again for all of your prayers and good thoughts.