Tuesday, October 22, 2019
Pssst, got BCG?
The doctor resected the old tumor locations and grabbed some additional spots for analysis as well. We won't really know anything until the pathology reports come in.
But the doctor says that we have a serious problem if we want to save my bladder. It has become almost impossible to get BCG, the immunotherapy I need for my cancer. Read about the shortage here. We need to get some and we need it now. The dwindling supply is indeed critical.
The Tice strain of BCG was developed at the University of Illinois from a live culture that originated at the Pasteur Institute. Although additional strains are being grown in Germany and Japan, the Tice is the only currently FDA approved form of the Bacillus of Calmette and Guerin (BCG) strain of Mycobacterium bovis.
Made by Merck, it takes three months to grow. They almost quit production two years ago, they don't make a lot of money on it but it is keeping a lot of people alive and needs to be produced for my and many others sake. I was part of one of the first BCG studies back in 1985 and it kept my bladder cancer at bay for a long time.
Because my current cancer is a bad one, a couple T1s in the lamina wall, I should go to the head of the list but we have to get some first. If you know where to get approved BCG and can pull some strings, let me know.
Thanks and much love to all my well wishers. Your thoughts and prayers are appreciated.